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Health problems suffered by people

May 24th 2014 at 2:46 AM

The acquisition and sharing of scientific knowledge for all rare diseases, not only the most prevalent Development of diagnostic and therapeutic procedures new Raise public awareness of rare diseases.

Facilitate communication between the patient groups to share experiences and effective practices. Support the most isolated patients and their parents to provide new communities for the patient. Provide information to the overall quality of the community about the disease is rare. Legislation for the benefit of rare diseases such as support for medical research and to provide material support to the patient and his family Provide incentives for companies to develop treatments for rare diseases.

Solidarity and cooperation is an important part and effectively in support of patients with rare diseases, so be on several levels, including: Solidarity at the level of the patients Solidarity at the level of the disease Solidarity at the level of health care providers, specialists and patients Solidarity at the level of researchers and pharmaceutical factories and decision-makers Solidarity at the level of states

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