Alexandram28 | Ebeccasfund

Ebeccasfund

Dec 16th 2010 at 8:38 PM
Rebecca has a condition called pseudo turner syndrome. She has a terminal deletion Xp22.33-p22.2. like Turner's & is a lifelong condition. The costs of traveling to appointments is setting us back. We have to travel to Little Rock, every six months. Very little is known about Her medical condition . Also there is vey minimal amount of things that can be done to assist people with her condtion. She is now 22 months & 20 pounds. She is still very short for her age and has problems walking. Her symptoms are severe developmental delay, club foot, low growth hormone, & acid reflux.The geneticist said she should not be able to see, hear, or walk so she is blessed because she can.  Although she was delayed in her walking & crawling her hearing & her eyesight seem to be just fine. She has already had blood work, xrays, & MRI. The name of the fundraiser is called vitaminB because that is my nickname for her. She is very cute & knows it. She is playful. She is unaware that anything is wrong with her. All money donated will be used to provide cost of travel, food & lodging for her trips to Little Rock.
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Jan 7th 2011 at 9:07 AM by javagrandma
I'm so sorry...
   

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